The World's Rarest Skin Conditions | BORN DIFFERENT

Video Description

SUBSCRIBE to Truly: http://bit.ly/Oc61Hj THESE people live with some of the rarest skin conditions in the world. Their skin is meant to protect them, but for these individuals, that hasn’t always been the case. What is it like to live with one of the rarest skin conditions in the world, like Epidermis Bullosa, or Scleroderma, or harder still, a skin condition that remains a mystery to doctors? How do they navigate the world with these rare conditions that are not only medically challenging but also make them look different? Chapters: 00.00-00.57 Film introduction 00.58 -06.08 Shirley’s Scleroderma story 06.09-13.16 Lucas’s Giant Congenital Nevus Story 13.17-20.35 Sohana’s journey with EB 20.36- 26.21 Kianna’s Port Wine Stain Birthmark 26.22-32.45 Karene’s extreme case of Xeroderma Pigmentosum 32.46-38.58 Elio’s Mystery Skin Condition 38.59- 44.00 Nancy’s undiagnosed skin journey 44.01- 49.54 James’s battle to accept Vitiligo Producer: Ruby Coote Editor: Olivia White If you have an amazing story and want to appear on the show, please email [email protected] and the team will be in touch! For licensing and archive requests, please email the licensing team: [email protected] Click below to follow your favourite Truly shows on social media! TikTok: Truly - https://www.tiktok.com/@truly_show Transformed - https://www.tiktok.com/@transformedshow Love Don’t Judge - https://www.tiktok.com/@lovedontjudgeshow Snapchat: Born Different - https://bit.ly/3XluKiQ Hooked On The Look - https://bit.ly/3Xi0UM6 My Extraordinary Family - https://bit.ly/3XkEDNJ Love Don’t Judge - https://bit.ly/3Z05bFe Dating Different - https://bit.ly/3XkRbEU Miami Muscle - https://bit.ly/471TQX8 Rahki’s World - https://bit.ly/3yL9lX3 Brand New Me - https://bit.ly/3MtxpRb Bling Life - https://bit.ly/3Xi0Agv Transformed - https://bit.ly/45bDs3R Shake My Beauty - https://bit.ly/3Z18hZH Facebook: Born Different - https://www.facebook.com/BornDifferentShow/ Hooked On The Look - https://www.facebook.com/HookedOnTheLook My Extraordinary Family - https://www.facebook.com/myextraordinaryfamilyshow Love Don’t Judge - https://www.facebook.com/lovedontjudgeshow Shake My Beauty - https://www.facebook.com/ShakeMyBeauty Truly - https://www.facebook.com/TrulyShow/ Instagram: Truly - https://www.instagram.com/trulyshow Born Different - https://www.instagram.com/borndifferentshow/ Shake My Beauty - https://www.instagram.com/shakemybeauty/ Hooked On The Look - https://www.instagram.com/hookedonthelookshow/ Love Don't Judge - https://www.instagram.com/lovedontjudgeshow/ WhatsApp: Truly - https://whatsapp.com/channel/0029Va7rMHN3LdQb9EImSq1k Born Different - https://whatsapp.com/channel/0029Va7LtVj5vKAECosskZ3W Shake My Beauty - https://whatsapp.com/channel/0029Va6zwHg3QxRwc7oziV2f Hooked On The Look - https://whatsapp.com/channel/0029Va73ZzGFsn0jE5Qccg2K Love Don't Judge - https://whatsapp.com/channel/0029Va6nERS3wtb0ygxXSl3X My Extraordinary Family - https://whatsapp.com/channel/0029Va7KtwY4Y9lltHCqba2N Transformed - https://whatsapp.com/channel/0029Va7EJ2y4inor5ddlOe1z