A Day In The Life of Epilepsy

Video Description

"A Day in the Life" is a short documentary produced by CURE Epilepsy about a day in the life of one family living with epilepsy. Kelly and Miguel Cervantes’ daughter Adelaide was diagnosed at 7 months old with infantile spasms, a devastating and difficult-to-treat form of epilepsy. This 30-minute documentary filmed in early 2019 when Adelaide was 3 years old focuses mostly on an average morning in the Cervantes home: medication prep and delivery, a tour of Adelaide’s room, getting their young son Jackson ready for school, a physical therapy session, and, amid the family’s morning routine, a seizure. It is, at times, a challenging watch. Outside of an epilepsy monitoring unit, no one wants to see someone have a seizure. But in the words of Kelly Cervantes, “I think it is important to share this life. This was our normal, our so very not-normal normal - and remains a version of normal for 65 million people living with epilepsy worldwide and that will never be ok.” Adelaide passed away later that year from complications of her many neurodegenerative challenges. Still, her story remains one that is important for those in the epilepsy community and beyond to hear and learn from. We hope you will watch with empathy and an open-heart, and think of the 3.4 million Americans and 65 million people worldwide who live with epilepsy and experience their own version of this "day in the life" every day of theirs. STAY CONNECTED WITH CURE EPILEPSY Sign up for our newsletter for the latest in epilepsy research news: https://www.cureepilepsy.org/subscribe/ Follow us on Facebook: https://www.facebook.com/CUREforEpilepsy/ Follow us on Twitter: https://twitter.com/cureepilepsy/ Follow us on Instagram: https://www.instagram.com/cureepilepsy/ INCREASE YOUR IMPACT Share your story: https://www.cureepilepsy.org/personal-stories/ Help us find a cure: https://www.cureepilepsy.org/get-involved/donate/ #epilepsy #epilepsyawareness #seizures #seizureawareness