A Dying Child and his Single Mom Who Won’t Give Up
Special Books by Special Kids
@specialbooksbyspecialkidsAbout
These interviews are intended to create a more inclusive world. SBSK started when I was a teacher for students with disabilities. Originally intended to be a book written by my students, SBSK soon grew to be video interviews of disabled people of all ages and diagnoses. Since our beginning in 2015, I have interviewed hundreds of people across the world while providing over $2,000,000 to those featured on this channel through a combination of grants and fundraising. Starting in 2015, SBSK is now a 501(c)3 organization that seeks to normalize the diversity of the human condition under the pillars of honesty, respect, mindfulness, positivity and collaboration. This multi-media movement supports the acceptance and inclusion of all members of the neurodivergent/disability community. -Chris
Video Description
Sun is diagnosed with Hunter Syndrome, a rare and fatal disease. He began losing his ability to walk, talk, see, and hear at just 5 years old. His single mother, Briah, has watched him slowly regress while doing everything she can to care for him. As his condition has progressed, Briah has also seen the world grow quieter around him. People have stopped noticing Sun, and other children no longer say "hi." Briah hopes other parents teach their kids that everyone is different, and it's okay to say "hi". You can support SBSK and help us keep making these videos at https://www.patreon.com/c/sbsk
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