Family Living with Friedreich's Ataxia: The Boon Family

Attitude August 29, 2020
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Attitude, with 20 years of expertise as multimedia specialists and documentary makers, celebrates people with disabilities by presenting life from an authentic perspective. Our stories highlight the challenges and aspirations of extraordinary individuals, fostering connections between audiences and the experiences of those living with disabilities. We encourage viewers to walk in someone else's shoes, communicating simply and respectfully without resorting to pity or clichés. Our content, received globally, inspires empathy, understanding, and a desire to make a difference. Our work also helps brands authentically connect with the human experience. Our digital and broadcast content has earned numerous international awards. Learn more at www.attitudelive.com

Video Description

Joe Boon is turning 30. It’s a milestone for anyone, but particularly for Joe and his family, who carry a rare genetic and degenerative condition that carries a life expectancy of just 37. Three out of five siblings - including Joe - have Friedreich's Ataxia, which gradually attacks the neuromuscular system. Not diagnosed until their teens and early 20s, the family have battled to cope with the implications of the disease - each one handling it differently. Follow Us on Facebook: https://www.facebook.com/attitudetv Follow Us on Twitter: https://twitter.com/attitude_tv See more Videos: https://www.attitudelive.com https://www.tiktok.com/@attitudepictures

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